The week started so well. Monday saw nearly a whole day in the
new physiotherapy room without interruptions, unfortunately it was downhill
from there. The wheelchair crisis was starting to get to me after I had to
decide who would get the nearly new wheel chair I found in a store
room. Two of the boys with brittle bones asked if they could be the lucky one
to receive it. It didn't fit either of them, or even have a cushion, but
it was miles better than what they had. I didn't know how to choose
between them, but in the end had to give it to another boy with cerebral
palsy. The front wheels of the chair he was using were broken and he
couldn't move forward without huge effort which put him into extensor
spasm.
I tell Sister we have to get new chairs for all of them. She
tells me "I have good news! Shonaquip have said they will come before June
to measure them!" I have a bit of an emotional moment in front of the
staff who look embarrassed. By the end of the day, Sister has more good news
and tells me if I can take the measurements, the order will be sent. Yay!!
Back in the UK wheelchair measurements are done by an occupational therapist,
how hard can it be?
I down load a form off the internet and aided by
Justice, spend a large part of the day measuring wheelchairs. Bob
Hackett, working on an ILO project out here for BEDCO, joins us. He has a
contact who can make up cushions, which will do as an interim
measure, as goodness knows how long it will take for the new wheelchairs
to arrive.
I finally get to do some physiotherapy at the end of the day as
the kids have taken to rocking up to the physio room about 4 pm after school,
as a sort of ‘after school club’. Sometimes, I have up to about twenty of
them at a time leaping about in the room. Its mayhem but everyone is
having fun. Can't imagine doing such a thing in the NHS. There are kids rolling
by on therapy balls, pumping iron, skipping, stretching and spinning hoops.
Today I played my sax as well just to add to the carnival
atmosphere. The acoustics are brilliant in the classroom and the kids are
transfixed. Thaby, who is hemiplegic following a head injury, wants me to teach
him to play. I try to explain that a soprano would be a very hard
instrument for him to start on, especially since I will be gone in two
weeks. I do have a tin whistle which I will bring in for him and
see what he can do.
The amount of time I have been able to spend with the children
has been really frustrating and I wish there was more time for
physio, but I have to do a hundred and one things that aren't physio. The week
descends into meetings, budgets, invoices, supply quotes, IT hell, pleas for
funding, lost nuns, and a vicious murder. If that wasn't enough drama for one
week a writ was served on Saint Angela's by a charming South African
company for back sliding on the monthly payments for the photocopier.
Turns out the monthly cost of the photocopier is more than the monthly bill for
staff salaries .... don't ask!
In the middle of the chaos a group of Irish students
turn up for a couple of hours each day to sing, dance and paint with the
children. The kids look baffled and so am I, but I accept it as part of the
madness that surrounds me. I have lost my ongoing battle with the lady in
the preschool kitchen to secure a bucket of water to wash
my hands in, and health and safety, together with manual
handling, have gone out of the window.
Next week’s plan is a whole week of physiotherapy and to
write a two-day training course for staff. Also to find the
mysterious private physiotherapist who St Angela's have been paying for, for
one day a week for the last two years. I need to ask her why all the kids were
walking around on broken crutches and if she has noticed anything wrong with
their wheel chairs. Thank goodness I am staying longer at St Angela's than
the original one week planned.
Week 3
Hours spent swearing at my laptop and praying for Justice to fix
it-6
Hours spent doing physiotherapy- 14
Hours spent doing horrid budgety, financy, emaily, phoney,
quotey, and meeting things- 8
Hours spent measuring wheelchairs- 5
Emotional breakdowns -1
Writs -1
Perfect taxi's- nearly perfect
Dancing/singing Irish students spotted - 6 to 8
An amazing insight into the lives of less able and disabled children and their plight for life in this beautiful area of Africa. The achievement and advancement into making their lives more comfortable and many times happier is evident from the photographs on the blogs. Well done Jan and the amazing team you have joined to share your expertise and experience with. All good wishes for your next visit and anticipation of many more blogs.
ReplyDeleteThanks Susan. Less than two weeks to go now
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