Sunday, 26 February 2017

Blog 13 : Under Pressure


I’m not sure how I have got to the age of 55 without meeting a priest, so when Justice’s mother was keen to introduce me to the local Father, early in the week, I decided to take the opportunity. The possibility of divine intercession, in trying circumstances, can never be passed by.

I was expecting to be introduced to a black Father, but instead find a white Italian, South African who enjoys brass bands. I decide to play him the beginning of John Coltrane’s Spiritual on my soprano sax. He looks puzzled and I wonder how anyone can not have heard of the 60’s Jazz icon John Coltrane. I decide a quick switch to Amazing Grace is necessary and when I finish offer to look at the fathers aching neck. I show him some exercises to do, which he says he adhere to, but thinks he will still need the medicinal whiskey to keep the pain in check.

My soprano playing goes down better with the pre-school children who have no inhibitions about getting on down with James Brown and Jaco Pastorius. I feel I have slightly redeemed myself in their eyes, having baffled them on Tuesday with the story of the three little pigs. This totally mystified them, even with the aid of finger puppets. The pre-school is just across the corridor from the physiotherapy room so I see quite a lot of their activities and have already had two children brought to me with extremely bowed legs. It is unclear whether they have Rickets or Blount’s disease (I have never seen either before) and I try to make a sensible plan of action with the aid of the internet.

I come across a lot of medical conditions in Lesotho that I have never seen before and am currently following up Lorato from the adjoining primary school (see blogs 5 and 10) who has TB of the hip. When I last saw Lorato, in April 2016, she was in a great deal of pain. She had been in a wheelchair for 6 months, unable to walk, had massive abscesses on her buttock and leg and the left hip had contracted to 45 degrees. I suspected osteomyelitis and she finally got the X-ray, I had been demanding, just before I left Lesotho. This confirmed osteomyelitis due to TB of the bones. Lesotho has the highest rates of TB in the world, due to poverty and HIV. TB of the bones is much less common than in the lungs, and unusual in young children. 
  
Since her diagnosis Lorato has been on antibiotics and has improved to a much better level than I had hoped. She is now on crutches and back at school. When I examine her, the left hip is still contracted and her pelvis rotated to compensate for the shortened muscles in her back. She has a cord tied round her waist which Christine (the volunteer social worker) tells me is a charm against witchcraft. Lorato’s parents have no concept of TB and believe her condition is “deliberate” (a curse). The conflict between Western medicine and traditional Witch doctors add to the many problems of healthcare in Lesotho.

Lorato herself, has been turning up regularly to do physiotherapy with her little gang of friends from the school. She’s a spunky kid and tolerates me stretching and grinding her hip, with a grimace. She has much more fun stretching herself on the physiotherapy ball, and has already become an expert in this skill. Justice arranged for a doctor, with a special interest in TB, to come and see her this week. I talk to Dr Johnson about the possibility of Lorato seeing an orthopaedic specialist and having an operation to reshape the femoral head. This would improve the movement of the hip so she can grow in a more normal posture as she approaches puberty. Dr Johnson promises to pursue this and how much such a procedure would cost.

He is just about to leave when Kats crawls through the door. The ever-smiling Kats who sometimes comes to physiotherapy several times a day with his great friend Rets, who never stops laughing despite his trousers continually falling down his spindly, stiff legs. They both love to play floor football and Kats has asked whether he can go to Bloemfontein to fix his legs. Bloemfontein is in South Africa and the nearest big hospital where the kids can go to have major procedures.  

I get Dr Johnson to take a picture of Kats flexed knees in view of asking a specialist about the possibility of Botox injections to relax the hamstrings. Even if such a procedure is possible I don’t know how long it would last as Kats has Cerebral Palsy and his brain will keep sending the same messages which tighten his leg muscles. The procedure would cost thousands of Maluti and it is unlikely that the Lesotho government would pay for the operation, or the ongoing follow ups he would need.    

Kats goes and cheerfully smiles and waves to me in his wheelchair as he passes by the window, unaware that he has further added to the banging headache that has plagued me this week. Trying to make the right decisions for the children’s health care in areas which I have little experience in, with no specialist guidance, is proving stressful. Added to these concerns are two meetings I have arranged to try and effect longer term changes at Saint Angela’s, which could improve the future well being of all the children.

Before these meetings, I have more minor decisions to consider on grab rails in the children’s toilets. The wonderful men and women of Ireland, who have fixed a basket-ball net to the physio room wall, put a grid for noughts and crosses on the repaired floor, made a large contribution to the water bill debt, built the pre-school a playground and put a disabled shower into the dormitory block, have grab bars left over from their endeavors and ask me if they can be used in the toilets. In the UK, such decisions are taken by an occupational therapist and I decide the best thing to do is to get the kids to demonstrate how they get on and off the toilet. With a variety of disabilities, they approach this task in different ways, including two boys who pull themselves forward onto the seat by pulling on the toilet cistern. How the cistern hasn’t fallen off the wall I don’t know and the result is grab rail on the back wall as well as ones on the side.

Action Ireland has been a revelation to me this week. I was unaware of all the work they do, besides the kid’s entertainment with the Irish students they bring over each year. I meet with the director of the Charity and explore the possibility that Saint Angela’s might benefit from some more sustained input and support from them over the next five years. I meet with Sister and the board of Saint Angela’s and tell them that opportunity knocks, not only with Action Ireland, but in engaging the volunteer social worker as the employed social worker and physiotherapy assistant. I have been very impressed by her and feel she offers a chance to engage someone with the necessary skills and aptitudes in both areas. 


I hope I’ve said the right things and presented a compelling case for Saint Angela’s to consider taking advantage of these opportunities. The pressure has felt huge as I try and pick my way through the surrounding politics. Ultimately you can take a horse to water … Perhaps when the priest has recovered from the shock of John Coltrane he will offer up a prayer  

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